Friday, 02 October 2009 00:00
Seven individuals, including Jason Katz and Dean Friedman of Great Neck, rode in the City to Sand 100-Mile Ride bike race on Saturday, Sept. 12, on behalf of 6-year-old kidney disease patient Matthew Levine of Melville and raised over $62,000 for The NephCure Foundation.
Katz led the way with $47,297 raised, while Friedman gathered $12,825 in donations.
They were joined for a portion of the ride by Steve Cronin of Great Neck, Matthew’s uncle Ross Levine, Jason Margolis, Bryan Black and Mike Collins. The group tallied $2,800 in donations.
The City to Sand 100-Mile Ride started in New York City and ended in the Hamptons. There were 112 total riders in the event, which raises money for various charities. The NephCure Foundation’s total of $62,992 led all charities in total dollars raised.
“This was a life highlight,” said Katz. “It was a humbling and yet incredibly rewarding experience both physically and spiritually. Matthew is a genuinely nice, sweet and happy kid. Giving him that trophy meant the world to both of us.
“This was a tough but awesome journey. It was amazing to see everyone come together for us. I’m glad to report that the human spirit is alive and well.”
Matthew Levine was diagnosed with Focal Segmental Glomerulosclerosis (FSGS) at the age of 3 and has been treating the disease ever since with medications that have not been successful in putting it in permanent remission. There currently is no cure for FSGS and the cause of the disease is also unknown.
FSGS is the second leading cause of kidney failure in children and targets adults as well.
Because of medical privacy laws (HIPAA), The NephCure Foundation has a unique challenge in finding families affected by NS and FSGS. Therefore, in addition to fundraising for research, The NephCure Foundation devotes much of its efforts to identifying patient families through the media exposure generated by events like The City to Sand 100-Mile Ride.
For more information on the City to Sand event, including the route, visit www.the100mileman.com.